From the Chairman of Invest in ME Research
Helping Invest in ME Research
Invest in ME Research
is an independent UK charity facilitating and funding a strategy of biomedical research into Myalgic Encephalomyelitis (ME or ME/CFS)
and promoting better education about ME.
The charity is run by volunteers - patients or parents of children with ME.
We do not receive and have never received funding from government or government organisations.
The charity decided early on that biomedical research into ME was crucial in order to make progress in treating this disease.
We also decided that education of healthcare staff, the media, government departments, patient groups and patients was
to be a priority.
Our conferences and, later, our colloquiums were organised from the beginning in order to provide a platform for research and a means of facilitating education about ME. In order to bring the best education and research to London each year we welcome all support for these events as there are significant costs involved in achieving this.
On the right of the page we have a number donation buttons which direct funds to help the charity cover the costs of conferences and
research meetings and the general running of the charity
or to augment ring-fenced funds for specific
We thank you for considering supporting us.
IIMEC12: TWELVE YEARS of RESEARCH EFFORTS FOR ME
A Vision of Excellence for research into ME
In June 2016 Invest in ME Research held its sixth Biomedical Research into ME Colloquium in London - BRMEC6.
The Colloquium had as its theme international collaboration.
Our Colloquium banner used the following quote –
"Coming together is a beginning;
keeping together is progress;
working together is success"
- Henry Ford
It was a theme that our invited delegates (researchers from 14 countries around the world) embraced.
The BRMEC6 Colloquium was a pivotal point in the history of Invest in ME Research as it celebrated its 10th year as a charity. Because coming from the meeting was a palpable sense of research into ME really having become an international concern – endorsing Invest in ME Research’s strategy of international collaboration in research into ME.
Collaboration and working together can easily become just buzz-words – meaningless terms given out in press releases and handouts, attempting to make an impression that something is happening.
Yet BRMEC6, and the following public IIMEC11 conference, really did validate our long held belief that international collaboration in biomedical research can lead to patients being given back their lives.
Last year was the first time that the Invest in ME Research conferences had a speaker from a government organisation.
It was wonderful to have Dr Vicky Whittemore representing the National Institute of Health and opening both our BRMEC6 Colloquium and IIMEC11 Conference and showing NIH visibility for this disease and endorsing our view of international collaboration as a critical means to an end.
Both the Colloquium and Conference were high-quality, forward-looking events which served to improve knowledge of this disease and generate and improve international collaboration into ME.
As always the charity took on the task of producing a high-quality DVD of the conference which serves not just as a historical record but provides a means to educate doctors and clinicians about the seriousness of this disease. The DVD has been distributed to eighteen countries proving the increasing interest in research into this disease.
For 2017 we build on this and renew the commitment.
We were pleased to see that the US NIH listed as its goals for ME research the following -
- Advance research on the cause, prevention, diagnosis, pathophysiology and treatment of ME/CFS
- Encourage biomedical research investigators and organizations to study ME/CFS
- Communicate ME/CFS research information among and between NIH Institutes and Centers, and the NIH Office of the Director
The first two goals are similar to those that Invest in ME Research have been promoting and implementing for the past eleven years and have mentioned in our letters to the UK MRC, DoH and others in the position of influence.
The third has elements that epitomise the IiMER strategy as our proposal for a Centre of Excellence for ME – something we have been aiming for since 2010 – now develops to the point of being able to be implemented.
Progress has inevitably been too slow from the patients’ perspective but as we pass our tenth year as a charity more and more signs and developments are indicating that things are changing.
Research into ME has needed a strategy – it was surely missing when IiMER was formed and has continued to elude
the major UK funding organisations.
Yet the Invest in ME Research strategy of bringing in researchers from other fields to help and improve biomedical research into ME was a necessity. It has been successful and well worth the effort and cost and we can witness this approach becoming more popular.
Our conferences bring together patients, researchers, clinicians and healthcare staff and allow knowledge and experiences to be shared – and IIMEC12 and BRMEC7 will see us entering our twelfth year in doing this.
Our BRMEC7 is again a two-day event with biomedical researchers invited from around the world.
The IIMEC12 Conference (our twelfth annual international conference) allows researchers, clinicians and patient/ groups/patients and carers to mix with each other, discuss together and network with unique opportunities – all enabling a greater understanding of this disease.
Back to the theme of collaboration with a purpose. Our Colloquium and Conference events offer a unique vehicle for progressing research into ME via a strategy of biomedical research. We welcome researchers interested in ME to become involved.
We hope to see many new faces in London as well as old friends.
We often like to remember and use a quote that illustrates the Invest in ME Research approach to research into ME and the raising of awareness -
"Vision without action is merely a dream.
Action without vision just passes the time.
Vision with action can change the world."
Precisely the ethos of the Invest in ME Research Biomedical Research Colloquiums and Conferences!
Welcome to London - Welcome to IIMEC12 and BRMEC7