A New Era in ME/CFS Research IIMEC5


IIMEC5 London, May 2010

The 5th International ME/CFS Conference 2010 took place on 24th May 2010 in London and was attended by presenters and delegates from 18 countries and four continents.
We would like to thank those attending the conference and contributing to another day showing the progress being achieved by biomedical research. The conference had a wonderful and exciting atmosphere which was present during the whole day.

For 2010 the conference concentrated on education of healthcare professionals and left no one in doubt about the serious consequences of this illness.
It also continued to show the promise and real hope of treatments for this illness based on science and proper investigations. We hope that everyone left not only with an enhanced knowledge gained from the conference but also with renewed hope for development of more treatments for myalgic encephalomyelitis.

To the presenters we extend our grateful thanks for the work you are doing. The breadth of knowledge, science and experience regarding ME, as discussed and presented at the conference, is not only impressive but also exciting.

We hope that the many contacts which were established at the conference will continue and we hope to remain in contact with as many of you as possible.

The conference for 2010 showed the urgent need for more funding for biomedical research and the sure progress being made by those committed professionals with a clear strategy for scientific advancement.

Past IiME Conferences

IIMEC5 2010 was our seventh annual international conference for ME. The conference regularly attracts clinicians, researchers, healthcare staff, charities, support groups and patients and carers fromtwenty countries around the world.
This allows unique networking opportunities and increase the potential for one of the charity's main objectives - international collaboration between researchers.


IIMEC5 Conference Agenda 2010

Lecture Theatre Birdcage Walk

Conference Speakers

Emeritus Professor Sunderland

Chair of the 5th Invest in ME International ME/CFS Conference 2010 was Professor Malcolm Hooper, Emeritus Professor of Medicinal Chemistry, University of Sunderland. Professor Hooper is an internationally-renowned expert on ME/CFS and a tireless campaigner for patients' rights. Professor Hooper has previously chaired Invest in ME conferences and participates in The Hooper Interviews - interviews with conference speakers at the Invest in ME Co

(DePaul University, Chicago, USA

Professor Jason has been among the most prolific of all ME/CFS researchers. For more than a decade, Professor Jason and his team at DePaul University's Centre for Community Research in Chicago have worked to define the scope and impact of ME/CFS worldwide. Professor Jason was Vice President of the International Association for Chronic Fatigue Syndrome (now the IACFS/ME) and has been a key driver of CFS research since 1991, and is uniquely positioned to support collaboration between CFS researchers, patients, and government decision makers. His studies have shown that the direct and indirect costs of ME/CFS amount to $20 billion in the U.S. each year, and more than 1 million people suffer from ME/CFS as opposed to the estimated 20,000 people originally reported by the CDC (Centers for Disease Control and Prevention).

University of Nebraska Enterovirus Research Laboratory, USA

Nora Chapman, PhDis a Research Scientist at the University of Nebraska Enterovirus Research Laboratory and Associate Professor at the University of Nebraska. Dr. Chapman studies persistent coxsackie infections in murine models of chronic myoccarditas and dilated cardiomyopathy. She and her associates have demonstrated that selection of defective enterovirus in heart and other tissues leads to persistent infections despite active antiviral immune responses. Dr. Chapman is presently studying the mode of selection of these viruses and the effects of replication of these viruses upon infected cell function. Dr. Chapman and her associates at the University of Nebraska are further investigating Dr. John Chia's work in regards to enterovirus in the gut biopsies. Source : Enterovirus Foundation

Infectious Disease Specialist, Torrance, California, USA

Dr John Chia is an infectious disease specialist practicing in Torrance, California, USA and has published research recently (Chronic fatigue syndrome associated with chronic enterovirus infection of the stomach) on the role of enteroviruses in the aetiolgy of ME/CFS – an area which has been implicated as one of the causes by a number of studies. There are more than 70 different types of enteroviruses that can affect the central nervous system, heart and muscles, all of which is consistent with the symptoms of ME/CFS. By analyzing samples of stomach tissue from 165 patients with CFS, Dr Chia's team discovered that 82% of these individuals had high levels of enteroviruses in their digestive systems. Dr Chia's research may result in the development of antiviral drugs to treat the debilitating symptoms of ME/CFS.

Medical Director of the Cheney Clinic in Asheville, North Carolina, USA

Dr Paul Cheney, MD, PhD, is Medical Director of the Cheney Clinic in Asheville, North Carolina. For more than 25 years, Dr Cheney has been a pioneering clinical researcher in the field of ME/CFS and has been an internationally recognized authority on the subject of ME/CFS. He has published numerous articles and lectured around the world on ME/CFS and is author/co-author of numerous publications and scientific presentations about ME/CFS.

Sir Joseph Hotung Senior Lecturer in Inflammation, St George's University of London, UK

Dr Jonathan Kerr is Sir Joseph Hotung Senior Lecturer in Inflammation, St George's University of London. Dr Kerr is now the principal investigator in a programme of research in ME/CFS. This involves development of a di agnostic test using mass spectrometry, analysis of human and viral gene expression in the white blood cells, and clinical trials of immunomodulatory drugs. He has recently published research identifying distinct subtypes in patients with ME/CFS. More research by Dr Kerr - click here.

Professor of Medicine, Psychology, Microbiology and Immunology at the University of Miami School of Medicine, USA

Dr Nancy Klimas MD, is a Professor of Medicine, Psychology, Microbiology and Immunology at the University of Miami School of Medicine. She is the University’s director of the Allergy and Immunology Clinic as well as Director of Research for the Clinical AIDS/HIV Research at the Miami Veterans Affairs Medical Centre. She is a member of the federal CFS Advisory Committee (CFSAC) and former President and current Board Member of the International Association of CFS/ME (IACFS/ME) and a founding editor of the Journal of Chronic Fatigue Syndrome. Dr Klimas has been a leader in the field of ME/CFS research for many years and recently Dr Klimas opened a model clinic for CFS patients with the aim to treat patients as well as train doctors. Dr Klimas has published over a 130 peer reviewed scientific papers. As the principal investigator of one of the NIH sponsored CFS Research Centers she leads a multidisciplinary research team representing the fields of immunology, autonomic medicine, neuroendocrinology, behavioural psychology, rheumatology, nutrition, and exercise physiology. The University of Miami CFS Research Center is exploring interactions between the immune, autonomic and neuroendocrine.

Professor of Pathology at Tufts University, Boston, USA

Tufts Medical School, Boston, Massachusetts, USA Professor Huber studied immunogenetics at University of London and is currently Professor of Pathology at Tufts University, Boston, USA. Dr Huber joined the faculty of Tufts Medical School in 1977, and her laboratory has investigated the cellular and molecular mechanisms involved in the immune response since that time. She has studied the presence of retrovirus HERV K-18 as a marker for those who might develop ME/CFS after an acute infection such as mononucleosis. Her research shows that EBV induces the HERV K-18 envelope gene to trigger the expression of a specific superantigen and that there are more HERV K-18 alleles in post-mono ME/CFS patients than in controls. She hopes to identify other subsets among CFS patients.

President of the Whittemore Peterson Institute for Neuroimmune Diseases, Reno, Nevada, USA

Founder and President of the Whittemore Peterson Institute for Neuroimmune Diseases, Reno, Nevada, USA. The Institute is located on the medical campus of the University of Nevada. Its mission is to serve those with complex neuro-immune diseases such as ME/CFS, viral induced central nervous system dysfunction and fibromyalgia. Annette Whittemore graduated in Elementary and Special Education at the University of Nevada and taught children with neuro-cognitive deficits, such as those found in autism, ADD, and learning disabilities. As the president and director of the current operations at the Institute Annette supports the basic and clinical research program, and actively recruits physicians and other support personnel for the Institute.

Research Director at the Whittemore Peterson Nevada, USA

Obtained her Ph.D. in Biochemistry and Molecular Biology from George Washington University. She is Research Director at the Whittemore Peterson Nevada CFS centre for Neuro-Immune disorders and has co-authored over 40 peer reviewed publications that address fundamental issues of viral pathogenesis, hematopoiesis and cytokine biology. Dr Mikovits was co-author of the "Detection of an Infectious Retrovirus, XMRV, in Blood Cells of Patients with Chronic Fatigue Syndrome" research paper in October 2009 in Science magazine - click here.


Conference Report

With fourteen countries represented at the conference the 5th Invest in ME International ME/CFS Conference brought together researchers, clinicians, journalists, patients, support groups and even film crews. IiME also self-funded places for some media persons and some researchers and offered places to others in order to improve knowledge of ME.

Unfortunately the editor of the British Medical Journal, despite numerous emails inviting her to come and assurances that the BMJ would be represented at the conference, nevertheless left it to nine hours before the conference start to inform that she would not be attending. The fact that the BMJ could not find one person to attend this major conference made it difficult for anyone to have any faith in the BMJ editorial staff ever commenting on the subject of ME and be taken seriously.

With hindsight the BMJ's tunnel vision was predictable. But there are many more positives from the conference to make up for establishment apathy. One of the attendees at the conference, Dr Martin Scurr, a GP and also writer of a column in the Daily Mail entitled "Ask the Doctor", wrote after the conference in his column of 7th June the following -

"I admit it, I was wrong. For many years, I - like many of my medical colleagues - have blamed ME on psychological or behavioural causes.
Then, last month, I attended the 5th (Invest in ME) World Conference on ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome)."

For a doctor and a national newspaper to admit they have been wrong demonstrates the conferences are having an effect.

As we have maintained all the while education about the illness is the surest way to defeat the vested interests who have much to lose or who make a living out of the misinformation about ME. The online article by Dr Scurr is available - click here. The American Journal of Biochemistry and Biotechnology invited all of the Invest in ME 2010 conference speakers to submit their papers for publication. The first one by Professor Leonard Jason is now available online. We are pleased to see this paper on a revised Canadian Definition published for the wider audience - click here. [also http://www.investinme.org/IiME%20AJBB%20Conference.htm].

The 2010 conference DVD has already been distributed to twenty countries around the world.

A new feature for this year's conference DVD was a pre-conference "brainstorming" session with some of the speakers at the conference. 

The Journal of IiME Issue 4 Volume 1 was published at the conference.


Conference DVD

IIMEC5 Conference DVD

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The DVD contains 4 discs and is in PAL format- containing the full presentations from the 2010 conference plus plenary sessions, and the pre-conference interviews with some of the speakers.

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Format: PAL
Length 477 minutes
Contents Full presentations from conference plus pre-conference dinner speech
  • Customer
    5.00 out of 5

    Many thanks again to all of you for the fantastic work you are doing on behalf of people with ME.

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    I am delighted having received the DVD and after watching it I have been very impressed with the research efforts underway.

The views expressed at the Invest in ME International ME Conference conferences by the presenters and delegates to the conference and any information material distributed are their own personal opinions that are not necessarily shared or endorsed by the Trustees of Invest in ME/Invest in ME Research.

Invest in ME/Invest in ME Research accept no responsibility for the views expressed or any subsequent action taken. The contents of any presentation should not be deemed to be an endorsement, recommendation or approval of such content by Invest in ME/Invest in ME Research. The materials presented at the 1st Invest in ME International ME Conference 2006 do not constitute medical advice. No medical recommendations are given or implied by Invest in ME/Invest in ME Research. Any person registering or attending the conference, or purchasing the DVD, who may take any action or consider medical treatment or referrals should take detailed advice from their own medical practitioner. Invest in ME/Invest in ME Research disclaims any implied guarantee about the accuracy, completeness, timeliness or relevance of any information contained at the conference.

By purchasing any of the conference DVDs you agree that Invest in ME/Invest in ME Research is not liable for any complications, injuries, loss or other medical problems arising from, or in connection with, the use of or reliance upon any information contained in the conference.


IIMEC5 GALLERY

Images from IIMEC5, London, 2010


PAST INVEST in ME INTERNATIONAL ME CONFERENCES

More details of previous Invest in ME conferences can be found on the current IIMEC* conference overview page - Click here.


Our Sponsors for IIMEC5

Invest in ME wish to thank the following organisations for helping to sponsor the 5th Invest in ME International ME Conference 2013.


The Irish ME Trust

The Irish ME Trust have sponsored a speaker at all of our conferences and we would like to thank them for their continued support.



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If you have any questions regarding the conference then please contact us by email and we will get back to you as soon as possible. Thank you for your interest in the charity.


Contact Address

  • Address: Invest in ME Research PO Box 561 Eastleigh SO50 0GQ Hampshire UK
  • Phone: 07759 349743
  • Fax: 02380 000040
  • Email: meconference@investinme.org

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Other Invest in ME Research Activity

Invest in ME Research - Mainstreaming Research into ME

Invest in ME Research Projects

Possibly the two most important research projects for ME in the UK
Both initiated and funded by Invest in ME Research and our supporters

Research

IIMER are facilitating a strategy of biomedical research into ME. The charity is currently funding possibly the two most important research projects for ME in the UK.
Currently the main hubs of research are at UEA/IFR in the Norwich Research Park and at UCL. These involve a gut microbiota project at UEA/IFR in the Norwich Research Park and B cell research at UCL in London, leading to a clinical trial of rituximab.

Advisory Board

The IIMER Advisory Board is made up of eminent researchers who are helping the charity to form a credible and productive biomedical research strategy which will provide the best and quickest route for possible treatments and cures for this disease.

Research Funding

Invest in ME Research supports high quality, biomedical research into myalgic encephalomyelitis. We are open for applications for funding for such research and the charity welcomes applications for grants for projects of 6 months - 3 years duration.


Let's Do It For ME

Let's do it for ME! is a patient-driven campaign to raise awareness and vital funds for a UK centre of excellence for translational biomedical ME research, clinical assessment, diagnosis and treatment for patients, training and information for healthcare staff, based around the Norwich Research Park in the UK and aiming to work collaboratively with international biomedical researchers.

Research Colloquiums

In addition to the International ME Conference the charity also organises an annual International Research Colloquium which attracts researchers from around the world in order to discuss experiences and open up collaborations in order to find answers for this disease.

Centre of Excellence for ME

Translational biomedical research - an iterative feedback of information between the basic and clinical research domains in order to accelerate knowledge translation from lab to bedside and back to lab again - allows translation of findings in basic research more quickly and efficiently into medical practice to produce more meaningful health outcomes and facilitate the sharing of repositories and research-based facilities and laboratories. This is the model IiMER are attempting to promote in the proposal for an examination and research facility based in Norwich.




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